WG2 - Governance

Convenor: Danica Cossio, Manager Cancer Control, Cancer Alliance Queensland

This working group aims to:

• Establish a clear framework to streamline access and ensure sustainability of the ACDN project and improve accessibility to support data users including clinicians, data scientists, governments and policy makers.

Focus to date:

• Review governance frameworks of participating teams to identify a governance model that supports the research platform and to support the reporting of lung cancer clinical indicators
  
• The governance framework will consist of two paths – a legislative model and an ethical (HREC) model depending on the use and source of the data
• Documentation of the dual governance model to support both state-wide and individual research projects